Join our founder and some other caregivers who have been navigating the DMD journey for a while now to learn more about valuable resources and to start building a local support system. Grab your favorite morning beverage and let us know if we can send you a Best Day Ever mug too!
This free class is open to any individual living with Duchenne muscular dystrophy AND/OR their siblings! We provide the iPads and Apple Pencils! The instructor will teach a few basic skills for using Procreate and participants will have time to create while also socializing and building friendships with others navigating a similar journey - living with Duchenne. Caregivers are welcome to stay on-site and spend some time together or take some alone time at the coffee shop downstairs or in a quiet corner close to the class! This class takes place in downtown Indianapolis at an accessible location with free, easy parking. Register below and someone from our team will be in touch with logistics!
If you are caring for someone living with Duchenne or Becker Muscular Dystrophy, please join us! Lunch will be provided for free. We will talk about Indiana Medicaid Waivers, Home Health, School Resources, Accessible Home and Vehicle Resources, Vocational Rehab, Approved and Investigational Therapies, Indiana Access Pass, Best Holiday Gifts & Experiences, and any other topics important to caregivers! Interested caregivers should complete the registration form below and someone from our team will reach out with more logistics including the exact location. Free, easy downtown parking!
This event is open to all families living with Duchenne muscular dystrophy! Bring the siblings, the aunts, the uncles, the grandparents and anyone else in your support system who would like to join us! This will be a fun, educational and social event with great food, drinks, activities, games and time to reflect on all the things we have to be grateful for this year!
Every individual living with Duchenne (and siblings) will get to choose a special advent calendar to take home and there will be other fun surprises for families too!
Travel scholarships are available! We do not want any obstacles keeping families from being able to attend!
A resource fair, showcasing information from our sponsors and vendors, will also be available!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Newly diagnosed with Duchenne and looking for resources and connections? Join our founder (also a Duchenne mom) for this Saturday morning Zoom to learn about resources and how to get connected with other local families.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
If you are caring for someone living with Duchenne or Becker Muscular Dystrophy, please join us for this “share & learn luncheon.” Lunch will be provided for free. We will talk about Indiana Medicaid Waivers, Home Health, School Resources, Accessible Home and Vehicle Resources, Vocational Rehab, Approved and Investigational Therapies, Indiana Access Pass and any other topics important to caregivers! Interested caregivers should complete the registration form below and someone from our team will reach out with more logistics including the exact location. Free, easy downtown parking!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Newly diagnosed with Duchenne and looking for resources and connections? Join our founder (also a Duchenne mom) for this one hour, Saturday morning Zoom to learn about resources and also meet some other families who have been on the journey for a while!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This event is open to any individual living with Duchenne or Becker muscular dystrophy AND/OR siblings! All ages are welcome! Participants will learn some of the basics of Procreate, have an opportunity to create, and connect with others in this informal setting. Participants will also learn how this app can be used as a tool in the classroom to modify the way they complete traditional assignments/tasks more easily. iPads and Apple Pencils will be provided by Best Day Ever Foundation but if participants have their own they are welcome to bring those. Each participant will need to have a caregiver who stays on-site. The caregivers will have an opportunity to spend time together in a separate area during that time. Please register using the form below and one of our team members will reach out to discuss logistics prior to the event. This event will take place in downtown Indianapolis, close to Monument Circle, in a fully accessible location with free parking.
Join us for a Zoom on Wednesday, July 3rd from 8:00 p.m. - 9:00 p.m. EST to hear from our founder, Laura McLinn. Laura recently attended three national conferences focused on Duchenne muscular dystrophy and will share her BEST takeaways. Can’t make this Zoom? Let us know and we can set up an additional time to meet/share! Please complete the form below!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Best Day Ever Foundation is teaming up with Kyle’s Legacy for a fun night of bowling with the University of Notre Dame Hockey Team! Come to bowl or just hang out!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This educational and social event is for caregivers who want to learn, share and just connect with others! We all have so much knowledge we have acquired throughout our journeys, whether newly diagnosed or many years in to the journey. Topics of discussion may include Medicaid Waivers, Insurance, Indiana Access Pass, Home Health, Home Modifications, Accessible Vehicles, Caregiver Support, Respite and Personal Attendant Care Options, IEPs and 504s for School, Access to Approved and Investigational Treatments, Access to Quality Care, and more. We will meet downtown, near Monument Circle in a location with free parking. At the same time, there will be a digital art class available for individuals living with DMD or Becker and their siblings (see separate registration for that). RSVP using the form below, before June 6th please.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This event is open to any individual living with Duchenne or Becker muscular dystrophy AND/OR siblings! It is open to all ages! Participants will learn some of the basics of Procreate, have an opportunity to begin to create, and have an opportunity to connect with others in this informal setting. Participants will also learn how this app can be used as a tool in the classroom to modify the way they complete traditional assignments/tasks more easily. iPads and Apple Pencils will be provided by Best Day Ever Foundation but if participants have their own they are welcome to bring those to use instead. Each participant will need to have a caregiver who stays on-site and we will also be offering an opportunity for those caregivers to spend time together in a separate area during that time. Please register using the form below and one of our team members will reach out to discuss logistics prior to the event. This event will take place in downtown Indianapolis, close to Monument Circle, in a fully accessible location with free parking.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This event is open to all the moms, step-moms grandmas, sisters and aunts who have a loved one living with Duchenne muscular dystrophy. Enjoy a free brunch while connecting/building relationships through conversation, resource sharing and just enjoying a spring morning away from caregiving responsibilities. We will gather at a private location on the southside of Indianapolis. More details/logistics will be shared after receipt of RSVP.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This free luncheon is for anyone caring for a loved one who is living with Duchenne or Becker muscular dystrophy. A wide range of topics will be discussed including but not limited to: Medicaid, Medicaid waivers, Indiana Access Pass, school resources, approved and investigational treatments, vocational rehabilitation, camps and retreats, resources for home and vehicle modifications, respite care, personal attendant care, other home health services and more. The event will be held downtown Indianapolis and more details will be given up registration. Free, easy parking!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This free luncheon is for anyone who wants to learn more about resources for public, private, and homeschool models that can help individuals living with Duchenne and other complex medical conditions have the BEST educational experience possible. IEPs, Indiana School Choice and ESA programs will all be discussed. If your loved one has an IEP or ISP, please bring it with you! Come to learn and come to share! This program will take place near Monument Circle in downtown Indianapolis. Free, easy parking. Details/logistics will be sent upon registration.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This is event is FREE for families living with Duchenne muscular dystrophy! Lunch, Top Golf Games, Other Games and Activities, Resource Sharing and Connecting with Families are all highlights for this event! RSVP by February 14, 2024.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Join us for a Zoom to learn more about July 1, 2024 proposed changes to the Indiana Family Supports Waiver and the Indiana Aged & Disabled Waiver.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This virtual meeting is an opportunity for new families to learn more about Best Day Ever Foundation and the services we provide. Families will have an opportunity to meet some other families who have already been navigating the DMD journey for a while and will have a chance to ask questions. Our founding president, Laura McLinn, will be the host and we encourage all families to join the Zoom to welcome our newly diagnosed families!
This event is for caregivers only and is part of our ongoing, monthly, educational, and social program series - Living Our BEST Lives With Duchenne!
Caregivers will have an opportunity to connect, strengthen relationships, and form new ones, as we talk about anything and everything we have learned while navigating the Duchenne journey. There are so many great resources available to help families live the best lives possible. We will talk about what resources are available and how to utilize them! We know that caregivers have so much to share and learn from each other and that we truly are…BEST TOGETHER!
Our founder, Laura McLinn, who is also a caregiver to her son living with Duchenne, will host the luncheon, and this particular event will not have any industry sponsors or health care professionals present.
This event, part of our “Living Our BEST Lives with Duchenne” monthly program series, will be held at the Firefighters Union Hall in downtown Indianapolis. This one comes without any of the stress of preparing food though! EVERYTHING is free and included. Just show up with your family and friends and be prepared to have fun while connecting with others who are also living with Duchenne! There will be an educational presentation about resources for families including some guest presenters from MDFF, Indiana WISH and possibly others! There will also be an opportunity to meet one-on-one with a Best Day Ever representative to help navigate specific resources or ask questions. This venue has one big room for the dinner and presentation with an adjacent room for activities including: Lego and blocks building, magnet building activities, ornament making, trivia contests, car tracks, other arts/crafts and games, face painting and more!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Join us for a fun, fall evening in downtown Indianapolis! If your family is living with Duchenne, this event is for YOU! You can expect fun activities for everyone, free dinner and an opportunity to sit down for a one-on-one or small-group meeting with one of our team members to learn about resources including: Indiana Medicaid waivers, home health services, vocational rehabilitation, respite care, IEPS, approved and investigational therapies for Duchenne and more!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
On Friday, September 15th we will host our monthly program series, “Living Our BEST Lives with Duchenne” on the Purdue University Campus at the 8ELEVEN Modern Bistro located in the Union Club Hotel. Dinner will be provided. This is an opportunity to connect with other families and learn about helpful resources for families living with Duchenne. Please RSVP by Friday, September 1, 2023.
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Join us for a luncheon in downtown Indianapolis to connect, share and learn! This will be an informal event. Easy, free parking and access. Be prepared to share anything you have learned along your own family’s journey living with Duchenne and bring questions you may have. There will be an educational presentation about resources that are helpful for families as well as time to enjoy lunch together (free/provided), ask questions and socialize! RSVP below:
Our July program will be an early morning one! Join us by Zoom from the comfort of home or wherever you are! Bring your favorite morning beverage in your Best Day Ever mug to talk about anything and everything Duchenne: Medicaid, Medicaid waivers, home health services, IEPs for school, home modifications, accessible vehicle resources, vocational rehab, attendant care, respite care, special needs trusts, how to find information about approved and investigational therapies for Duchenne, information about other organizations that provide valuable resources to families, and ANY other topics caregivers want to discuss!
We are BEST together and this session is all about parents and caregivers sharing, asking questions and learning from each other. There will be no sponsors or pharmaceutical employees at this particular meeting.
WE HAVE A SPECIAL SPONSOR FOR THIS MONTH’S EVENT WHO KNOWS HOW VALUABLE THESE SHARING SESSIONS ARE AND THEIR SPONSORSHIP IS ALLOWING US TO SEND EVERY PARENT AND/OR CAREGIVER WHO PARTICPATES IN THIS MEETING A $50 STARBUCKS OR AMAZON GIFT CARD!
This year we are gathering at Back 9 Golf and Entertainment in Indianapolis for Father’s Day Weekend! This event is open to all the dads, grandpas, uncles, siblings, moms, grandmas, aunts, friends and individuals living with Duchenne! We will have a private room for those who just want to chat/connect, eat and drink, play games, and learn about helpful resources for the Duchenne journey! We will also have golf bays right outside that room for those who want to play and a connected outdoor patio with more tables, corn hole, ping pong, Connect Four and more! Families who have a loved one living with Duchenne are encouraged to bring everyone in the immediate and extended family and up to two extra friends who are a part of their support network! As always, everything is FREE and this is an accessible facility!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Join us for this special event on Mother’s Day Weekend! This is for all the moms, aunts, grandmas, sisters and friends of anyone living with Duchenne! The brunch will take place at a private location on the southside of Indy. Come ready to learn, share, connect and just enjoy a nice ladies morning out as we celebrate Mother’s Day Weekend together!
Join us virtually this month for Sunday morning coffee! This event is open to family and friends who are part of the journey of someone living with Duchenne muscular dystrophy. This particular event will not be open to any industry employees, sponsors or partners. Families will have an opportunity to connect with others, continue to form and strengthen friendships and relationships that are developing as a result of this program, and discuss a variety of topics important to families. There will be an educational presentation tailored to meet the interests and needs of the participants. Bring your Best Day Ever Mug filled with your favorite morning beverage.
WE ARE BEST TOGETHER!
This monthly program for families includes free dinner, games, resource sharing, an educational presentation and time to connect socially with other families living with Duchenne!
This month, every family who attends will also receive a free hydroponics growing system and a seed starter kit to grow vegetables and herbs inside with ease! We will talk about why a low-sodium diet matters for individuals living with Duchenne and everyone will leave with ideas for how to create low-sodium meals using some of the herbs grown with their new hydroponics growing system! Parents, grandparents, aunts, uncles, siblings, close friends… anyone living life with Duchenne with your family is welcome to participate!
NOTE - This event is being held at the Indianapolis Firefighters Union Hall in downtown Indianapolis. The Union Hall has a parking lot with free and easy parking right next to the building and the space we are using is accessible with plenty of room to move around!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
This program will feature information about the following: two Indiana Medicaid Waivers for which individuals living with DMD typically qualify (life-changing resource!), respite care, home health services, options for parents or other family members and friends to become paid caregivers for their loved ones living with DMD, the Indiana Access Pass which gives entry into many museums and fine arts productions in Indiana for just $2, how to access any of the currently approved therapies for DMD, how to find and enroll in clinical trials for experimental treatments for DMD, how to access resources for home modifications and accessible vehicles, and information about other local resources for families!
As always, there will be time for participants to share information they have learned along their own DMD journey. This is one of my personal FAVORITE things about this program because those living with Duchenne have so much valuable information to share and we learn so much from each other!
Join us from the comfort of home on Black Friday this year with your favorite hot beverage! We will discuss how to truly be “present” this holiday season and how to make it the BEST HOLIDAY SEASON EVER filled with peace, love and special moments! As always, we know individuals living with Duchenne AND their family members are often the BEST source of information so for this special meeting we are asking for everyone to help! Please share your BEST ideas for holiday gifts, traditions, experiences, etc. ahead of time! Please submit ideas before Thanksgiving!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
On Saturday, November 4th, our founding president attended the Muscular Dystrophy Family Foundation Expo. Join Laura on a Zoom so she can pass along all of the great info and resources she gathered from that event! Financial planning, special needs trusts, waiver case management, attendant hour services and services provided by AccessABILITY are just a few of the topics that will be discussed. She will also share the calendar of upcoming events for all of the organizations we are connected to in our community!
REGISTRATION IS NOW CLOSED FOR THIS EVENT.
Learn more about how to use the Indiana Family Supports Waiver OR the Indiana Aged and Disabled Waiver to help pay for home modifications. This educational Zoom is open to anyone who wants to learn more about how to navigate this process AND anyone who has been through the process themselves to share what they have learned!
